>Jessica , who writes over at Hormonal Mummy is a 20 something mummy to E and mummy to be to “flob”. She first started blogging in November 2009 and has assured me I couldn’t possibly find anything to write about her because she doesn’t post very often! Now while it’s true that she isn’t as prolific a blogger as some of us, her blog is a record of her pregnancy, her daughter E’s illness (Cystinosis) and her family life. It’s a lovely blog and it brings a tear to your eye when you read about what poor little E has been through with the numerous tests and hospital stays she has endured, but it also has the most gorgeous pictures of her showing that although she is ill she can smile and laugh with the best of them. She is a beautiful little girl who never seems to let her medical treatment get her down. As for Jessica, I don’t know how she copes with her beautiful little girl being ill, especially with all the not knowing before she was diagnosed, all while being pregnant, she’s a braver woman than me that’s for sure!
For those of you not familiar with cystinosis, as I wasn’t until I read Jessica’s blog, it is described here from an excerpt I have taken from cystinosis.org (there is obviously far more to it than this brief excerpt and more information can be found on their website):
“Cystinosis is a rare disease that primarily affects children. Cystinosis is a genetic metabolic disease that causes an amino acid, cystine, to accumulate in various organs of the body. Cystine crystals accumulate in the kidneys, eyes, liver, muscles, pancreas, brain and white blood cells. Without specific treatment, children with cystinosis develop end stage kidney failure at approximately age nine.”
My favourite posts from Jessica’s blog are:
Christmas is coming and I’m getting fat a post all about Christmas and Jessica’s scan
Hello! an unplanned visit to the labour ward, an update on on E and some lovely pics
Quick post Jessica’s cooking disasters and triumphs
The problem with E is…. yet more tests for poor little E
Diagnosis – Cystinosis! after numerous tests little E finally gets her diagnosis
It’s a ….. Jessica finds out the sex of her baby
So as part of follow friday, get yourself over to Hormonal Mummy to say hello and read some more of her posts.